Save the date!
Time in other regions:
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Atlantic Time (AT): 5:00 – 6:30 PM (e.g., Halifax)
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Pacific Time (PT): 1:00 – 2:30 PM (e.g., Vancouver, Seattle)
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Central Time (CT): 3:00 – 4:30 PM (e.g., Chicago, Winnipeg)
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Greenwich Mean Time (GMT): 9:00 – 10:30 PM (e.g., London, Dublin)
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Central European Time (CET): 10:00 – 11:30 PM (e.g., Paris, Berlin)
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Australian Eastern Daylight Time (AEDT): November 23, 2025 – 8:00 – 9:30 AM (e.g., Sydney, Melbourne)
November 22, 2025, 4:00 – 5:30 PM Eastern Time (ET; e.g., Montreal, New York, Toronto)
What is this event about?
Join us for a unique online event where patients hear directly from researchers about their latest findings.
This event offers two opportunities in one:
1. Hear about the latest scleroderma studies, selected as high-interest studies by patients, for patients.
2. Participate in a research study by providing ratings during the event on how clearly and effectively researchers present their findings for a patient audience.
Why should you attend?
Planned by researchers and patients, for patients
Learn about the latest top scleroderma studies selected as high-interest by patients for patients
Presentations tailored for people with scleroderma
Ask questions directly to researchers
Contribute to helping improve how researchers communicate with patients by providing quick ratings following each presentation
Speakers & Topics
Do Heated Gloves Really Work for Raynaud’s Phenomenon?
Hear directly from Dr. Kumar
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Learn more in our Q&A with Dr. Kumar
How Does Joint Inflammation Work in Scleroderma and What Might Work to Stop It?
Hear directly from Dr. Elhai
Learn more in our Q&A with Dr. Elhai
How Is Intimacy Affected in Scleroderma and What Can Be Done to Support It?
Learn more in our Q&A with Meghan
What Triggers Fibrosis in Scleroderma Skin?
Hear directly from Dr. Mareux
Learn more in our Q&A with Dr. Mareux
Speakers & Topics
Amy Gietzen, SPIN Steering Committee Member and Patient Advocate
Michelle Richard, SPIN Steering Committee Member and Patient Advocate
Judi McDonald, Scleroderma Caregiver and Advocate
Amanda Lawrie-Jones, SPIN Steering Committee Member and Chair of the Board for Scleroderma Australia
Jo-Ann Lapointe McKenzie, Patient Advocate, in conversation with Dr. Brett Thombs, Director of SPIN
Questions?
Email us at spin.pairs@gmail.com.
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