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SPIN-SSLED Trial Results Published in Orphanet Journal of Rare Diseases

by Marie-Eve Carrier | Oct 31, 2022

The SPIN Scleroderma Support group Leader Education (SPIN-SSLED) Program Trial results were published in Orphanet Journal of Rare Diseases. In the trial, 148 existing or candidate peer support group leaders were randomised to the 13-week videoconference-based program or to waitlist, and primary outcome data were provided by 146 (99%) participants. Satisfaction with the program was extremely high (30.3 out of possible 32 points), and participants attended an average of 11.4 out of 13 sessions. The program improved support group leader self-efficacy substantially, as well as leader volunteer satisfaction. The SPIN-SSLED Program continues to be offered by SPIN in collaboration with our patient organization partners.

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