The SPIN Steering Committee is responsible for the review of the SPIN project direction and coherence, including advising on Cohort recruitment/retention and intervention development, feasibility and full-scale testing of interventions; reviewing and approving proposals for SPIN publications; managing finances and helping to resolve administrative issues. The committee and its patient members also ensure that SPIN maximally reflects the needs of people living with scleroderma and successfully provides knowledge transfer within the scleroderma community as well as with the broader rare disease community.