THE SCLERODERMA SUPPORT GROUP LEADER EDUCATION (SPIN-SSLED) PROGRAM
Running a support group is no easy task.
People with rheumatic diseases around the world count on support groups for education about their disease and emotional support. In scleroderma, many support group leaders feel overburdened or lack the training and resources to lead their groups effectively. To support these leaders and encourage new leaders to form their own support groups, SPIN has partnered with scleroderma support group leaders to create the SPIN-SSLED Program. This 12-week training program provides leaders with information and resources to help them feel more comfortable, confident and supported in their roles, and contribute to a more positive support group experience.
Introduction
Support Group Leader Testimonials
About the SPIN-SSLED Program
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12 weekly sessions of 60-90 minutes led by a trained instructor
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Each week tackles one aspect of leading a support group, including structuring a group meeting, recruiting new members, fostering a positive group culture, supporting yourself as a leader, and many other topics
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Participants can attend the online videoconference sessions from the comfort of their own homes
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Supplementary resources include:
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A workbook that summarizes all modules.
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An online forum where participants can discuss what they’ve learned with other participants.
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An online Resource Centre with educational videos and support group activity ideas.
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At the end of 12 weeks, participants receive a certificate attesting that they have successfully completed the program
Are you interested in trying the SPIN-SSLED Program?
SPIN researchers are continuing to provide the SPIN-SSLED Program training in partnership with patient organizations.
You may be eligible to join our trial if you:
1. Are a leader of a scleroderma support group or are working with/would like to work with a participating patient organization to start a support group.
2. Are at least 18 years old.
3. Have regular access to a computer and Internet connection.
If you fulfill the criteria above and are interested in trying the SPIN-SSLED Program, please contact your patient organization.
SPIN-SSLED Funders
The SPIN-SSLED program has been funded by the Scleroderma Society of Ontario, the Canadian Institute for Outcomes in Rheumatology Care, and the Canadian Institutes of Health Research.
