Feasibility and full-scale trials are completed. SPIN enrolled 466 patients from the SPIN Cohort in the full-scale trial. Results of the trial are currently under review for publication.
The SPIN-HAND Toolkit is now available to the public via the SPIN-SHARE dissemination initiative: tools.spinsclero.com. Want to start the program now? Open the SPIN-HAND toolkit
Feasibility and full-scale trials are completed. SPIN enrolled 466 patients from the SPIN Cohort in the full-scale trial. Results of the trial are currently under review for publication. Due to low numbers of people who accessed the intervention as part of the trial, however, we are unsure of the effects on hand function for those who use it. Nonetheless, we do not believe there are harms from using the program, and it may be beneficial for some people.
Kwakkenbos L, Sanchez TA, Turner KA, Mouthon L, Carrier ME, Hudson M, van den Ende CH, Schouffoer AA, Welling JJ, Sauvé M, Thombs BD. The association of sociodemographic and disease variables with hand function: a Scleroderma Patient-centered Intervention Network cohort study. Clin Exp Rheumatol. 2018;36(Suppl. 113):S88-S94. Link
Carrier M-E, Kwakkenbos L, Boutron I, Welling J, Sauve M, van den Ende C, Schouffoer AA, Hudson M, Thombs BD, Mouthon L, SPIN Investigators. Randomized Feasibility Trial of the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND): Study Protocol. Journal of Scleroderma and Related Disorders. 2018;3(1):91-97. Link
Levis AW, Harel D, Kwakkenbos L, Carrier ME, Mouthon L, Poireadeau S, Bartlett SJ, Khanna D, Malcarne VL, Sauve M, van den Ende CH, Poole JL, Schouffoer AA, Welling J, Thombs BD, and the SPIN Investigators. Development and validation of the Cochin Hand Function Scale- Short Form (CHFS-6) using optimal test assembly methods: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study. Arthritis Care Res. 2016;68(11):1704-1713. Link
The SPIN-HAND program has been funded by the Arthritis Society, the Canadian Institutes of Health Research, the Lady Davis Institute for Medical Research of the Jewish General Hospital, Jewish General Hospital Foundation, McGill University, the Scleroderma Society of Ontario, Scleroderma Canada, Sclérodermie Québec, Scleroderma Manitoba, Scleroderma Atlantic, the Scleroderma Association of BC, Scleroderma SASK, Scleroderma Australia, Scleroderma New South Wales, Scleroderma Victoria, Scleroderma Queensland.