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WHAT IS SPIN?

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The Scleroderma Patient-centered Intervention Network (SPIN) is an organization of researchers, health care providers, and people living with scleroderma from around the world. Individuals and organizations involved in SPIN are working on a novel research project with the goal to develop, adapt and test new and existing programs to help people with scleroderma cope with their illness and manage their daily lives. The areas covered by the programs developed by SPIN include, but are not limited to, managing symptoms, daily tasks, and emotions related to illness, as well as balancing activity and rest. SPIN is led by Dr. Brett Thombs from the Jewish General Hospital and McGill University in Montreal, Canada. The network is working closely with patient organizations from around the world, including the Scleroderma Society of Canada and its provincial chapters, the US Scleroderma Foundation, the Federation of European Scleroderma Associations (FESCA), and the Dutch patient organization for systemic autoimmune diseases (NVLE).