SPIN publishes the first study to report mental health symptom changes during COVID-19 in a vulnerable population!

• | Oct 07, 2020

The SPIN Team shares study results comparing mental health symptoms, before and during COVID-19, in 435 SPIN Cohort participants who took part in the SPIN-COVID-19 Study in April.

Announcing the Launch of SPIN-SHARE and the SPIN-HAND Toolkit

• | Apr 30, 2020

The SPIN Team is please to announce the launch of SPIN-SHARE, a central hub where you can access all the online SPIN toolkits as they become available! Instructions on how to access SPIN-SHARE and our first toolkit, the SPIN-HAND toolkit are below!

VIDEOFORUM - Scleroderma & COVID-19: A Conversation with the Experts

• | Mar 21, 2020

Dr. Thombs and the SPIN-HAND study featured in the Arthritis Society's Research Impact Snapshot

• | Feb 12, 2020

The snapshot highlights the importance of SPIN-HAND, our online exercise program that was first tested by SPIN Cohort participants and will be made available to the public in less than a month!

Seeking participants for SPIN-DINE an online focus group on diet and nutrition!

• | Jan 08, 2020

Introducing our new study on how people with scleroderma find information about diet and nutrition.

Congratulations Maureen Sauvé, recipient of the AAC's "Patient for Active Engagement in Arthritis Research Award"!

• | Nov 29, 2019

Today, Maureen Sauvé received one of the six Arthritis Alliance of Canada (AAC) 2019 Research Awards, for her remarkable achievements in the area of patient advocacy and research.

Congratulations on Dr. Thombs' Induction into the Royal Society of Canada!

• | Nov 26, 2019

Dr. Brett Thombs, SPIN's Director, was honoured this weekend by induction into the Royal Society of Canada. Congratulations to Dr. Thombs and the SPIN Team and community!

Congratulations Marine Hébert, winner of a trip to Prague for the upcoming Systemic Sclerosis World Congress!

• | Oct 29, 2019

Marine was randomly selected, from SPIN's Physical Activity Survey respondents, to win a free trip and join our team at the next Systemic Sclerosis World Congress that will be taking place in Prague, in March 2020!

Position Available: SPIN Postdoctoral Fellowship

• | Oct 10, 2019

SPIN is currently seeking applicants for a Postdoctoral Fellowship position, in partnership with Scleroderma Canada. Please read the job description for details.

Dr. Brett Thombs at the Scleroderma Society of Ontario's Shout it from the Rooftop Event

• | Oct 01, 2019

Dr. Brett Thombs was honoured to speak at the Scleroderma Society of Ontario's Shout it from the Rooftop event last week.

Help with scleroderma research by joining a SPIN Patient Advisory Team!

• | Sep 25, 2019

SPIN periodically seeks individuals with scleroderma to help with our new research projects. Please read the information below to learn more. If you think you might be interested and able to commit the time, continue to the next page to provide some brief information about yourself.

SPIN at the 2019 Scleroderma Foundation Patient Education Conference in Chicago

• | Jul 29, 2019

Last week, SPIN members had the pleasure of attending the Scleroderma Foundation’s annual Patient Education Conference in Chicago, where hundreds of people in the scleroderma community congregated to attend educational sessions led by leading scleroderma researchers and healthcare professionals.

A big thank you to everyone who attended the 2019 Scleroderma Walks!

• | Jun 26, 2019

SPIN at Sclérodermie Québec's Support Group Leader Day

• | May 06, 2019

Last weekend, Dr. Brett Thombs, Director of SPIN, and Marie-Eve Carrier, SPIN Coordinator, had the pleasure of speaking at Sclérodermie Québec's Support Group Leader Day.

Watch SPIN Director Dr. Brett Thombs' Rare Disease Day Presentation

• | Apr 01, 2019

On Rare Diseases Day in February, SPIN Director Dr. Brett Thombs spoke about some of the major challenges involved in rare disease research and how SPIN is working to address these at an event hosted by the Rare Disease Interest Group of the Medical Students’ Society of McGill University. Click below to watch the whole presentation!

SPIN Cohort recruitment has started in Australia!

• | Mar 13, 2019

The SPIN Cohort is expanding to Australia! We’re pleased to announce that St. Vincent's Hospital in Melbourne has joined SPIN as the newest clinical site for recruiting scleroderma patients for the SPIN Cohort.

Recap of Rare Disease Day 2019

• | Mar 07, 2019

On Rare Diseases Day last week, SPIN members were proud to spread the message about scleroderma research.

SPIN Renews its Mission on Rare Disease Day 2019

• | Feb 27, 2019

On Rare Disease Day 2019, SPIN’s mission is just as pressing as when it was first conceived ten years ago, and this year’s theme of “Bridging health and social care” is particularly relevant to SPIN’s work. The online support programs that SPIN is developing will support people with scleroderma as they navigate the many problems that scleroderma presents in a day-to-day life, including medical, social, and psychological challenges.

Funding received for clinical trial of the SPIN-SSLED Program

• | Feb 07, 2019

We're excited to announce that SPIN has received funding from the Canadian Institutes of Health Research (CIHR) to run a clinical trial of the SPIN-SSLED Program, a training course for scleroderma support group leaders.

Year-end thank you to the Canadian scleroderma community

• | Dec 21, 2018

As 2018 draws to a close, we would like to express our deepest gratitude to all of SPIN’s partner organizations who have donated their hard-earned funds to our projects over the past year.