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The SPIN Steering Committee is responsible for the review of the SPIN project direction and coherence, including advising on Cohort recruitment/retention and intervention development, feasibility and full-scale testing of interventions; reviewing and approving proposals for SPIN publications; managing finances and helping to resolve administrative issues. The committee and its patient members also ensure that SPIN maximally reflects the needs of people living with scleroderma and successfully provides knowledge transfer within the scleroderma community as well as with the broader rare disease community.

Member

Dr. Thombs is a Professor and William...

Brett Thombs

Director of SPIN, Project Leader, Psychologist

Dr. Linda Kwakkenbos is the Co-D...

Linda Kwakkenbos

Co-Director of SPIN, Psychologist

Marie-Eve Carrier is a Research Assoc...

Marie-Eve Carrier

Research Associate

Susan Bartlett PhD is an Associate Pr...

Susan Bartlett

Psychologist

Karen Gottesman is both a patient and...

Karen Gottesman

Patient Advocate

Vanessa Malcarne is a Professor in th...

Vanessa Malcarne

Psychologist

Maureen D. Mayes, M.D., is a rheumato...

Maureen Mayes

Rheumatologist

Dr. Nielson received his PhD in Clini...

Warren Nielson

Project Leader, Psychologist

Luc Mouthon, MD, is the coordinator o...

Luc Mouthon

Internal Medicine Physician

Dr. Marie Hudson is a rheumatologist,...

Marie Hudson

Rheumatologist, Epidemiologist

Dr. Laura Hummers is a Rheumatologist...

Laura Hummers

Rheumatologist

Amanda is the President of Scleroderm...

Amanda Lawrie-Jones

President of Scleroderma Australia and Scleroderma Victoria

Maureen Sauvé was president of...

Maureen Sauvé

Patient Advocate

Catherine immigrated from the Caribbe...

Catherine Fortuné

Patient Advocate

Joep Welling is born and raised in th...

Joep Welling

Patient Advocate

Geneviève Guillot was born in ...

Geneviève Guillot

Patient Advocate